To a certain extent, the day felt a little surreal. When I was pregnant and we got Max's HLHS diagnosis, we were warned that Max might not survive the pregnancy. Then we were made aware of the reality that Max might not survive to transplant or through it--crazy things happen during minor surgery and they were replacing his heart. But Max earned his nickname of Mighty Max and to me, he makes it look effortless. The kid is a rockstar.
We weren't able to do as much to celebrate Max's birthday as we wanted because we're still in the midst of his first cold and flu season. But we decorated the kitchen and I baked some cupcakes for Max. He wasn't very interested in eating his cupcake but he seemed to enjoy smushing the frosting around his high chair tray.
|The frosting is obviously the best part.|
After we finished playing with our food, Jon and I helped Max open his presents. He had a lot of fun! Sure, the wrapping paper was the best part, but he's been having a lot of fun playing with his new toys this week.
Since we weren't able to celebrate Max's first birthday with everyone the way we wanted to, we're planning on doing a barbecue at the park this summer so everyone can come (as long as everyone's healthy)!
Today is another celebration for our family because one year ago today, Max received his new heart. To date, that was the scariest and hardest day of my life but I am so grateful. I'm grateful for my fighter of a son, I'm grateful for all the love and support of our family and friends, I'm grateful for the medical team who saved our son, and most of all, I'm so thankful to Max's donor family. In a time of grief, they made an incredibly generous decision that gave us our son. I have so much love and respect for them and there is no way I could ever even begin to thank them for what they have given us.
This week is so special for us and I want to thank everyone who has stuck by us and supports us. I wish I could say something more eloquent but this week I feel like I'm at a loss for words. I'm just so in awe of my son, my superhero, my Mighty Max. Being his mother is such a gift and I am so appreciative of every day we have with him.